I FINALLY GOT MY MEDS ADJUSTED..BUT I STILL WOULD APPRECIATE SOME SUGGESTIONS/FEEDBACK

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Trialmember
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GOAT

I know that I have my whole life ahead of me and I so badly want to be pain free and if I can't have that then I at least will settle for a level of pain that I can still have a good quality of life..my diagnosis is a spinal fusion in my cervical spine C5-C7..I was front passenger with my seat belt on my best friend at the time was driving..no drugs/alcohol were involved..He was racing another car we were in his scion tc we'd just graduated in June 2005 the accident happened on October 25 2005..He passed the car he was racing we were on residential streets he was doin about 60mph he couldn't navigate the turn n he didn't brake so we hit a Ford Expedition full speed n how hard we hit it we projected the expedition truck from where it was parked all the way onto the peoples front lawn up the 8 steps smashed thru the storm door then demolished its way into the front of the house!!!! it hit their house soooo hard their doorbell kept ringing n the lights inside n outside the house were going on n off..my airbags never deployed....to make a REALLY LONG story short I'll fast forward right to the injuries he dislocated his shoulder and thats all that happened to him!!!! mine were a broken neck which resulted in a SEVERE burst fracture in the cervical region C5-C7 which left me a quadriplegic (paralyzed from the neck down) pre-op n after almost 12 HOURS of intricate tedious grueling surgery by the grace of God I came out unparalyzed..that's what started all my chronic intractable spinal pain..I was 17yrs old when this happened....6yrs later in May 2011 I was driving with my mom to my pain drs appt n this idiot Chinese guy came to a complete fn stop n by some miracle from God we didn't hit him but the fool behind us tailgating us while texting she rear ended us!!!! AGAIN I had my seat belt on and fortunately I didn't break anything except for the numerous bulging herniated discs, spinal stenosis foraminal narrowing n stenosis acute severe PTSD, muscle damage nerve damage fibromyalgia neurogenic pain hairline fracture in my lower mandible n chronic lumbar thoracic cervical n knee pain..with ALL these different forms of pain the meds that I'm currently getting aren't alleviating even half of the severe weather temperamental pain!!!! the meds that REALLY TRULY helped me were the Oxycodone 30mg 4-6 times a day, OxyContin 40mg twice a day, MsContin 100mg 3 times a day and Klonopin 2mg 2-3 times a day and Diazepam 5mg twice a day..but my liar of a dr says he doesn't prescribe Oxycodone 30mgs but I know ovr 10 people at the same office I go to who all see him and he gives them it and they don't have a fraction of the injuries I have!!!!Actually they don't even take it they hustle it and make a nice profit from it not to mention that they also collect disability benefits and a ton of other government cash rent and health/prescription insurance assistance!!!!while I'm STRUGGLING just to survive day by day with the horrific pain I endure....and I'm scared to switch drs because of this stupid epidemic even though all the wicked injuries I have warrant the scripts I need/want/used to get!!!! Soooo if any of you guys have any advice or suggestions or even drs that could help me u would be TRULY SAVING MY LIFE AND SIGNIFICANTLY IMPROVING MY QUALITY OF LIFE!!!! thanks and God bless you all!!!!

sandi123
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I have several, and most of them you won't like.

First, is get psychological treatment for the PTSD. There are wonderful therapists out there who specialize in and work wonders in treating PTSD.
Another is stop looking for medications to be the answers to all of the problems.
For some reason , people tend to want to add a "laundry list" of old diagnosis', old injuries, previous fractures as justification for why they need exorbitant amounts of opiates, and most doctors look at those lists as drug seeking/red flags. Fractures heal, hairline fractures heal as well.
Surgery repaired and stabilized your cervical spine and created solid fusion so the fractures are most likely well healed these many years later.

The dosages you are /were on, are way too high. The first rule of treating chronic pain is that you have to use many options in treating pain, not simply rely on ever increasing dosages and more meds to treat every little ache or pain. There is something called opioid induced hyperalgesia. You may want to read about it.
Get some excercise.....regularly. Swimming, stretching, yoga, meditation,physical therapy will all help on some level. Fibro isn't treated by most doctors with opiates, but instead with meds that treat nerve pain.
You seem to think that your doctor is only an idiot because he won't give you meds in dosages and quantities that are enough to take down an elephant or two....when the reality is that there aren't enough opiates in the world to eliminate chronic pain, but there are dosages and combinations that can easily suppress your breathing, and cause your death. Do you know how many deaths are caused by combining benzo's with opiates?? Call your local coroner's office....they will be happy to provide you the stats.
You are very lucky in that you are here, and not paralyzed.
Surgery was able to restore your mobility and prevent far worse things from happening.
The sheer volume of medications, dosages and demands for more, more, more are taking you down a road you don't want to go down.
I live with a double spinal cord injury. and severe structural and nerve related problems because of those injuries, been through two spine surgeries and facing a third to try to prevent paralysis and I take far less medications than you.
One of the things you need to understand about living with chronic pain is that this is a long term medical problem. Going so high, so fast and relying on one small part of treatment, the use of medications alone, is not going to work in the long run, and it will lead to no doctor being willing to take you on as a patient.
If I were you, I would be looking into physical, psychological, alternative therapies and work at finding a psychologist who works with PTSD who can help you learn coping techniques to manage the anxiety instead of looking for more meds.
And I would thank your doctor for trying to do right by you, by lowering the significant doses you are/were on, and begin discussing other avenues of treatment.
One last comment, stop comparing your doctor's decisions regarding medications to what you think others are given. Their condition is theirs and yours is yours. Just because a doctor may use one medication or dose with one patient, doesn't mean that he can or should use the same with another.

Rocker Dan
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Enough is enough

Dear Trialmember, Please listen to Sandi123 and Goat.It makes sense to not overdo all meds.i seethat you take MS Contin and Oxycontin and 30s for breakthrogh.You may need all,however what if you are dealt a new PM???? Wht if him/her says no to all you get now? What whould you do? Try and take one major extended release such as two  or 3 Oxycontins and 4 15 or 30 breakthrogh's and ONE benzo and keep it to that.i only speak from experence as i now take 3 60 Morphines and 4 15 mg Oxycodones and 4 10mg valiums and i am fine.Oh heck yes i "think "I need more but the other day a 4 Doctor meeting was held while I waited and the word came back to keep me on the same ammounts!!!!!I thought for sure i was to be cut back or out as was stated right before the meeting.Word is i have decent and honest doctors and was surprised to say the least! Let the Doctors Be doctors and everyone will be happy and pain free.You may have to ajust but better now than down the line.As always iCool wish you all the best.take care.....PEACE,RD

DyBNaps
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Be careful.

I started pain meds at age of 29 for a crohnic disease. At one time I was 30mg Oxycodone IR 5x a day, 30mg Ocycontin 2x a day, and 1mg xanax 120 month for anxiety. After several years my dr office closed, and I was directed to a new PM DR. At the first apt I was discontinuied from the Xanax, lowered to 4 30mg IR Oxycodone a day, and taken off the Oxycontin and put on 12mg Exalgo 1x a day, which is way less Long acting med. At first i was scared, in pain, and upset. After a month or two, the cloud I was in, that I didnt realize lifted, my pain improved, and I actually thanked the new Dr for lowering my meds. I excercise, go to church, and see a chiropractor now as well.

Like others said, be careful for how you talk about your Dr, don't worry about what others are given, because you can only worry about you. When you start telling a Dr what you know others are getting, they start to get suspicious about why you know these people, and what you are doing. Most Dr's are not lowering your meds to make you suffer, but are doing it to juggle giving you relief, as well as a quality of life. They don't want you walking around like a zombie, having less of a life, because you are never going to be out of pain totally. Dr's could raise our meds every year, but our pain would adjust, and we would just need more, and more. And most Dr you would switch to these days are cutting pt's back, or not taking them on as Pt's because they don't want to take on the liabilty. It x*#&s for us, but that is what we deal with in todays war on drugs. Honest people suffer because of the people you know that sell their meds. Those people should be turned in, and cut off.

Rocker Dan
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well said

Good post,good post!!!!!!

goat
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Agreed

 My first injury was compression fractures of my back at age 18..age 19...another cycle crash at 120 mph.I didn't start pain management until my mid 30s ..I'm just saying.

Rocker Dan
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Responding to lowering of medicnes

 Dear trailmember this last apoitement my Dr. said we had to lower my meds(MS Contin 60mg tid,Oxycodone 15mgs qid and valium 10mgs qid)I went into a flull fleged panic attack inso much my Dr. phoned my hospital Dr. and a former dr. and when he walked back in i was almost passed out with fear as he said "no changes" see i went to bat for you"I do not bet but wow was i freaked out!!! If i had objected or asked for more medicnes i whould have been wrong i informed himAnd by leting my Dr. be a Dr. everything went well,even got my RXs filled after 17 days(Cash)Try and just take what is perscribed and I think you get a healthy amount.You are young,and i am old,but save a larger amount for later in life if you can,,,Best wishe and i do "Hear You!"Peace Rd

gaucho
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Cutting an OC in half...

Not entirely true; the m/r system used in Oxycontin is such as that cutting in half (as opposed to crushing and powdering into something resembling talcum powder) does NOT release all the oxycodone at once at all. I have been doing this for several years now. In fact only this morning I required a bit more than my usual 120mg dose; I took an 80mg tablet plus HALF of a 120mg, neatly sliced, & a 20mg. Total 160mg - onset and duration of action AT THAT DOSE AND GIVING THE DESIRED ANALGESIA was, as always, exactly the same as swallowing them whole. In my case OC tablets have a duration of average 6 hours before rescue meds are required, & for the entire time I certainly felt the effect as should be of a 160mg dose. A friend who works in the pharmaceutical industry (at Macfarlan Smith, one of the largest opiate/opioid API manufacturers in the world and who provide Bard Pharmaceuticals with the oxycodone HCl for the vast majority of the world's OxyContin brand name pills - Napp and Mundipharma are only the distributing companies - as well as branded morphine sulphate, diamorphine bydrochloride, dihydrocodeine tartrate, hydrocodone bitartrate, hydromorphone HCl, the list goes on and on... oh and [filtered word] bydrochloride as well though that is very infrequently used nowadays; this friend assured me that the system used for m/r OC pills is such that cutting like that is fine, the two halves will release the active ingredient at practically the same rate as whole tablets. He knows what he is talking about. It is a completely different system to that employed in MST Continus (MS Contin in some countries) which relies on different thicknesses of a wax substance coating particles of the API which then degrade at different rates, the whole ensuring a kind of consistent release, but not nearly as accurately as the far more cutting edge methodology employed with OC.
I have no idea what the precise mechanism is with the dreadful 'OP' m/r system; all I know is that they can not be powdered to make a more immediate release as they are like a gummy plastic inside... and in my experience - which I assure you will never be repeated - give analgesia which feels about HALF as potent as regular 'OC' pills and which also gave me some awful gastrointestinal sixe effects. And a headache, for God's sake. Those are fit for nothing but flushing down lavatories if you ask me! If they are the only Oxycontin you can get I suggest switching to IR Oxycodone. Preferably brand name capsules as the binders used in tabletting make Oxynorm 20mg caps feel stronger than tabletted 30mg. (Like temazepam, oxycodone seems to have a dislike for binders causing bioavailability issues - the only temazepam I accept at pharmacies, or should I say to be written up on Rx by the doctor, is the oral solution 10mg/5mL. Oxynorm oral solution is also excellent, having a much faster onset than capsuled powder. The 10mg/1mL is particularly useful for the kind of doses I require, around 45-50mg being my usual.)

slosippa
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GOAT//

IM 38 and i suffered a work related injury when i was 22 and another in a car accident when i was 24...(on my way to pysical therapy for ironys sake lol)  i recieved my first prescription ever when i was 22 in 1999 i believe for #100 vicodin 3 x a day  #100 soma  3 per day + 10 "extra of each" just in case (it was not as strict then as it is now....so yes in 38 now and ive been on some kind of opiate or another since 1999. ive have mutiple surgeries and fusions and all my problems lie in my lower back..L-4,l-3,L-2  , degenerative disc disease, its also brought on depression,(b/c i couldnt work) anxiety,chronic fatigue...but i am improving! i run two miles each day and plan on joining a gym this year...

merry christmas Goat and fellow pharmers!

goat
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Happy new year

 I try to walk a couple miles every other day..I can't run..I can still ride a bike pretty far.  I am at 150 lbs..down from 245..helps a lot not carrying so much weight