Body Rejecting PM Trials: Can Y'all Help?
Hey there. I think I'm finally registered as a member. It's been a HOOT! I'm hoping wiser minds will prevail for me, as my battered GI (through disease/surgery) is rejecting PM med trials.
I will try to give some background, though I must warn you: It's chix stuff, technically. Pain is pain, right? I am a 53 year old woman with a lifelong history of injuries and disease. I have extensive spinal/joint maladies as well as stage 4 endometriosis. I am 21 years post surgery to remove my uterus, ovaries and tubes. There was severe damage to my pelvic cavity, vagina and rectum. I also took a chemical therapy (Lupron) and tumor-suppressing med (Megace) for years to prevent the disease from raging. The Lupron fed upon my ravaged broken bones. I have severe arthritis, BOB pain grinding in my spine and my joints.
I need anti-inflammatory meds, but the oral cause ulcers in my surgically altered stomach pouch. I have mal-absorption issues and problems with med metabolism as well. I enrolled in pain management in January of 2014 out of sheer desperation. I had seen 8 specialists across 3 states, trying to find answers (possibly surgical intervention)in the Fall of 2013. Although MRI/CT with contrast showed areas of concern (as did a Full Body Bone Scan) the GIs, GYNs, UROs, ORTHs, NEUROs, etc. would do nothing to intervene surgically. I have herniated disks (cervical and lumbar) annular tears, DDD, Stenosis...Oh, and SHINGLES in my eye/face for almost a year now.
Although I managed for almost 4 decades with only Darvocet for pain...At 53 I had to surrender to PM for some help with pain. It's not gone well, as I had anticipated. My tummy rejects meds that have potential to relieve pain. My most recent trial was Fentanyl 25 mcg patch (every 48 hrs) for 6 weeks. It brought no relief, but major SEs causing night sweats and dumping of meds. I slept most of the day in my own drool. Not acceptable. I weaned myself off after using them from mid February through late March.
I'm back at square one and MUCH worse for the wear. My ortho suggested genetic test for metabolism, but my PM won't order the cheek swab.
I'm no chemist. I'm lost when it comes to medication. I've tried to avoid it most of my life. I'm a hard case that doesn't fit in a neat little box. My PM is not invested...wants to give up on me.
A pine box is looking better every day. Thank you for listening, as I'm sure y'all don't relish reading this saga of mine. I would appreciate any helpful input.